#238 An Extraordinary Story of a Spinal Cord Injury Clinical Trial, a Humanitarian Exception, and Extended InPatient Rehab with Gustavo Gilchrist

#238 An Extraordinary Story of a Spinal Cord Injury Clinical Trial, a Humanitarian Exception, and Extended InPatient Rehab with Gustavo Gilchrist

In this episode, we hear from Gustavo Gilchrist as he recounts the powerful journey of his son Patricio's spinal cord injury following a diving accident. We explore the details of a clinical trial and step down facility - an often overlooked step in the SCI journey. Gustavo shares the emotional and logistical struggles faced by the family, emphasizing the critical role of support and the race to explore experimental treatments for Pato's recovery. The conversation touches on resilience, social justice, and navigating the complex medical system amid crisis. Gustavo also discusses their time at renowned rehabilitation centers like Shirley Ryan Ability Lab and QLI, underscoring the dedication of medical staff, the importance of family bonds, and the profound mental and emotional aspects of recovery. He reflects on the personal growth and resilience gained through this arduous path, as well as the essential role of education and research in spinal cord injury treatment. 

Stay tuned.

Blink of an Eye® Podcast is sponsored by the Blink of an Eye® Non-Profit:

 A non-profit created as an essential national resource for Spinal Cord Injured families in the first days and weeks of SCI crisis when life turns upside down and few medical teams in the US have SCI expertise. Blink of an Eye non profit provides a rapid response HEAL Team for ICU bedside support to create an Extraordinary Experience despite the devastation for SCI families. Blink of an Eye non profit also provides a Multidisciplinary Family Navigation & Support Team for SCI families lead by SCI families and SCI medical experts who provide 24/7 support in the first 90 days of crisis and for transitions in the Miracle Year.  Stay tuned for their launch of a National Digital Resource Library, the SCI PLAYBOOK, chocked full of essential SCI information and trauma informed responses for the first hours, days and months after injury--what you need to know/say/do specialized for SCI families, friends and medical staff. To find out more, visit www.blinkofaneye.org.

 

 

 

 

To find out more about Louise and this podcast visit: www.blinkofaneyepodcast.com,  www.BeingRelational.com

www.BaltimoreMediation.com

 

Blink of an Eye is sponsored by New Mobility:

For more than three decades, New Mobility has published groundbreaking content for active wheelchair users. We share practical advice from wheelchair users across the country, review life-changing technology and demand equity in healthcare, travel and all facets of life. Please visit https://newmobility.com/ to learn more

 

Blink of an Eye is sponsored by Baltimore Mediation:

To find out more about learning relational advocacy and mediation skills for leaders and anyone navigating or facilitating difficult conversations, conflict, or trauma, visit the website www.BaltimoreMediation.com for nationally certified 40 hour courses, including the Enneagram for mediators to know themselves.